The Clinical Centre NeMO (NeuroMuscular Omnicentre)
The Clinical Centre NeMO (NeuroMuscular Omnicentre), a highly specialised medical centre part of the public Italian healthcare system (Sistema Sanitario Nazionale). The center manages four clinical facilities distributed from the North to the South of the Italian territory, located in Milan (Lombardy Region), Rome (Lazio Region), Messina (Sicily Region) and Arenzano (Liguria Region). Nemo responds specifically to the needs of those affected by neuromuscular diseases, implementing a multidisciplinary approach that puts users’ needs at the center. Its main purpose is to improve the quality of life of patients, providing them and their families with clinical and psychological support. Its mission is to create a network for the diagnosis, cure, and care of neuromuscular diseases based on the excellence of medical services and the centrality of the patient’s needs. Its objectives are about preserving the autonomy of the patient as long as possible, preventing and/or slowing down the evolution of the disability, improving the general quality of life. In particular, the individual rehabilitation plan is managed by a multidisciplinary team (composed by neurologists, neuropsychiatrists, psychologists, pulmonologists, and physiatrists) that takes care of the patient and his/her family along all the stages of the disease. Another novelty is the “nurse coach” who helps the family in taking care of the patient once come back home and manages the relations between the caregivers and NeMO and other medical services. The Centre’s 4 medical facilities reach out to approximately 3,200 patients/year. Its operating model relies, amongst other principles, on provision of funds from associations whose members are people with neuromuscular diseases and their families. Its operating model relies, amongst other principles, on provision of funds from the associations of people with neuromuscular diseases. That, allied with the fact that its operations are carried out necessarily inside of facilities/hospitals owned by the National Healthcare System, allows Nemo to provide free services to its patients.